110 East 40th Street, #506, New York, NY 10016 Phone: 1-212-682-5510 Fax: 1-212-983-1114

Home

About Us

Our Services

Quienes Somos

Treatment Centers

Patient Notification

Publications

Resources

Advocacy

Camp Information

Past & Current Events

Make a Donation

Contact Us

Hemophilia Association of New York

 

 Websites Related to
Bleeding Disorders


 
 

  


National Hemophilia Foundation
www.hemophilia.org

World Federation of Hemophilia
www.wfh.org

Hemophilia Federation of America

www.hemophiliafed.org

 


If you need to find a Hemophilia Treatment Center (HTC) in the local NYC area, NY state and any other state in the USA, please Click here.


 
Back-to-school preparation is better done before the first day of school. But if you haven’t done so you are still in time to tell the school about your child’s bleeding disorder.

It’s important to contact the principal, school nurse and your child’s teachers (including gym instructors) to explain to them about the bleeding disorder your child has.

Make sure the school has your contact information up-to-date to get in touch with you in case of an emergency.  Also provide them the contact information of your child’s doctor.


Your child should be able to participate in all of his classes, including physical education. However, if frequent bleeds happen during gym class, your doctor or the physical therapist at the HTC can work with the school to arrange a modified exercise program.


HANY can provide you with free pamphlets for the school, to explain hemophilia. Call us for copies at 212-682-5510. Your hemophilia treatment center is also available as a resource for starting the school year right.

It’s important to keep communication open between home and the school.


 
 
♦♦ Emergency Preparedness ♦♦

The National Hemophilia Foundation (NHF) has prepared a document called:  At a Glance! Key Steps for Individual/Family Preparedness in an Emergency, which helps family members follow simple steps to  prepare in case of an unexpected emergency.

If you are a residents of New York City, you can receive emergency notifications from the city's website by clicking here to register or by calling 311.  All other residents should contact their local government office to find out the emergency plans in your area.

 
 


BigAppleRx Prescription
Discount Card
                                                  Photobucket

New York City has launched the BigAppleRx prescription discount card.  This card is available free of charge and can be used at more than 2,000 city pharmacies.  With the card, you can:
  • Save every time you use it
  • Use it as often as you like
  • Cover an entire family
  • Save an average of 15% off brand name and 53% off generic drugs

The card is available to everyone and there are no forms to fill out. To learn more and to get your free card, please visit www.bigapplerx.com.