The Association is an organization of and for persons with bleeding disorders and their families helping each other. We serve persons within the 14 southeastern counties of New York State (New York City, Long Island, Dutchess, Orange, Putnam, Rockland, Sullivan, Ulster and Westchester.
Our mission since 1952 has been to provide information, education, advocacy and direct assistance to persons with hemophilia and a related bleeding disorder, and to encourage and support scientific research to improve medical treatments and to seek cures for those conditions.
ADYNOVATE First Product by Baxalta The US Food and Drug Administration approved ADYNOVATE for adolescent and adult patients (12 years and older) with hemophilia A (congenital FVIII deficiency). ADYNOVATE is the first product to be launched by Baxalta, formerly Baxter BioScience, a company with over 60 years of experience in hemophilia. To read the announcement click here.
Developed in collaboration with Common Core expert and New York City school teacher Michael Lepetit, the Stop The Bleeding! Activity Book is a fun, creative and thought-provoking way to highlight the core messages of the first thirteen episodes from our sensational web series! It's a perfect companion piece to work on as a family, as a group during a chapter event, or at another community gathering.
Support our cause when you shop online! Help us raise money for our cause. We have partnered with Goodshop.com so that every time you shop, you can get the best money saving coupons for different stores AND a portion of what you spend will be directed towards helping those with bleeding disorders and their families.
Why HTC's Matter: The Value of the Integrated Care Model Earlier this year, the National Hemophilia Foundation and Impact Education teamed up with us to create a video that clearly stated the value of the HTC care model from a variety of perspectives. While this video was created to be "payer-facing" (meaning that it was produced primarily for an audience of payers & other insurance company professionals to help them understand the value of HTCs), I believe this video has great value to our community as an advocacy tool beyond that just that specific use. Click here to watch it!!!
Rare bleeding disorder drug from Bio Products Laboratory gets FDA nod Bio Products Laboratory has won FDA approval for Coagadex, a coagulation factor X replacement therapy, for use in treating and controlling bleeding episodes in hereditary factor X deficiency patients at least 12 years old and for perioperative bleeding management in those with a mild form of the disease. The approval was granted based on data from a study involving patients with moderate to severe hereditary factor X deficiency and patients with a mild deficiency who underwent surgery.
BullyingPrevention Toolkit! October is Bullying Prevention Month. Though kids with #bleedingdisorders can easily become the target of bullying, we have the power to stop it. HFA's Bullying Prevention Toolkit has resources, tips & tricks, and handy how-to guides to help you and your family! Click here to get toolkit!